Lancaster Down Syndrome Advocates

Every year, a group of Ds moms from around the country get together. We normally have about 25 moms, but with Covid, it was a small year. This year was Nashville and we were able to get tickets to Rory Feek’s show and then meet him and his daughters (Indy has Down syndrome). It was an amazing experience.

Chris Nikic, YOU ARE AN IRONMAN! Congratulations Chris on becoming the first person with Down syndrome to finish an IRONMAN. You have shattered barriers while p...roving without a doubt that Anything is Possible! We are beyond inspired, and your accomplishment is a defining moment in IRONMAN history that can never be taken away from you. You swam 2.4 miles, biked 112 miles and ran 26.2 miles and now you get to brag for the rest of your life. The opportunities you have created for others around the world through this journey you embarked upon, is immeasurable. Thank you for allowing us to be a part of your remarkable life story and we can’t wait to see what you achieve next. The entire IRONMAN `Ohana #onepercentbetter #anythingispossible

Don’t forget to stop by Trunk or Treat tonight!

If you are thinking of attending this even, can you please comment below so they k ow how many people to expect? Than you!

Matthew and Kennedy are going to be on Access Hollywood tonight talking about the National Down Syndrome Society, Down Syndrome Awareness Month and some other things! Tune in and watch if you can!

We received this email for a study. We do not endorse or benefit directly from the study in any way. Your participation is completely your decision and we suggest learning more about the purpose and use of the study before committing to participate. My name is Amalia Hubal. I’m currently a third-year doctoral student at La Salle University, studying for my Psy.D. in Clinical Psychology. I’m currently in the planning stages of my dissertation, under the guidance of Dr. Patri...cia Wilson, as part of my requirements for my doctoral degree. This study is going to look at siblings and seeing the impact this sibship has on their feelings of loneliness, social support, and emotional and behavioral adjustment. For this study, I’m planning on looking at 3 groups of siblings: individuals with a sibling diagnosed with autism, individuals with a sibling diagnosed with Down Syndrome, and individuals with a sibling with no known diagnosis. Siblings between the ages of 8-18 who live in the same household as their brother or sister are eligible to be included in the study. I feel that siblings are often overlooked both in research and in practice, and the research that has been done has been very conflicting. I’m hoping this study will help in providing some clarity to the field. I’m reaching out to see if you would be amenable to me reaching out to individuals from your group Lancaster Down Syndrome Advocates to participate in my study. I’m seeking individuals in the Pennsylvania and New Jersey area that may have families fitting this criteria. It would be an online survey sent to them via email, and would involve one sibling and one parent to respond to the survey. The sibling would be asked about their social support resources and feelings of loneliness, and parents would be asked about their family demographics, behaviors of the sibling, and severity of their child’s autism or Down Syndrome (if applicable). This study is extremely important to me for many reasons. I’m personally a sibling of an individual with autism, and have spent my life working and volunteering with individuals diagnosed with autism, Down Syndrome, and other developmental disorders. I’ve worked with Special Olympics New Jersey since 2003, and my career goal is to work with individuals with autism and their families. Thank you for taking the time to read this. If you’d like to reach out for any further questions, you can reach me at my email, [email protected], or via phone, 609-227-8315. I look forward to hearing from you, and appreciate your time. Best, Amalia Hubal, M.A. La Salle University | 2023 Doctoral Student, Clinical Psychology [email protected] 609-227-8315

This online presentation is for anyone with a child with special needs. Parents, this is aimed at starting the thinking about college, regardless of age, for y...our child even with an intellectual disability! TOday! SPEAC presents: Envisioning College for All Learners in Pennsylvania: Experiences of Families and Students Zoom Meeting May 14, 2020 at 7pm Updated: Zoom connection info below. Join us to learn about post secondary college programs for students with disabilities, sponsored by PA Inclusive Higher Education Consortium (PIHEC). PIHEC is a collaboration of higher education institutions dedicated to designing and supporting campus settings to facilitate an inclusive education for young adults with intellectual disabilities. College is possible for your child! Zoom info to connect with us on May 14: Join Zoom Meeting [https://millersville.zoom.us/j/94167396127](https://millersville.zoom.us/j/94167396127) Meeting ID: 941 6739 6127 Password: College See more

REGISTRATION IS OPEN! https://www.ndsccenter.org/annual-conven/cfyc-registration/ Join us May 11 - June 27 for the first-ever NDSC 2020 Convention From Your Couch. This virtual experience will offer programming and social connections for the entire family. Beginning the week of May 11, we will present 3-4 new, one-hour workshops per week, along with the opportunity to attend Sharing Sessions designed for your individual ages and stages. Plus, we will be offering six Deep ...Dive Sessions over the course of the event. These 3-hour interactive workshops, presented by world-renowned speakers, are designed for those interested in gaining more in-depth knowledge and engaging in discussion with an expert on a specific topic. Starting in June, we will kick-off Youth & Adult workshops, spotlights, and of course, the talent show! There will also be sessions just for siblings in a virtual Brothers & Sisters Conference. The multi-week event will culminate with a full-day virtual event on Saturday, June 27, that will include Advocacy Training Boot Camp; Awards Presentation; Plenary with Keynote speaker, Zack Gottsagen; Membership Meeting; and a Zoom 321 Dance Party. Registration is just $49 per household. Optional Deep Dive sessions may be purchased as add-ons for just $19 each. While we’ll miss seeing everyone in person, we are planning a top-notch learning experience along with opportunities to socialize. REGISTRATION IS OPEN! 2020 Registration Fee: $49/household - includes access to all workshops (general and Y&A) and social activities throughout the timeline, including sharing sessions and all June 27 activities. Deep Dive Sessions: $19/ea. Unlike the in-person convention, you can attend more than one Deep Dive session. 2020 NDSC Convention From Your Couch T-Shirts: $19/ea. If this will be your first NDSC Convention, we hope to give you a glimpse of the magic that our one-of-a-kind event holds. While we will miss seeing everyone in person, we will still provide a meaningful 2020 convention and hope that you are making plans to join us in Phoenix in 2021!