Love From Liam Foundation

Do you have a child with Spina Bifida? Do you wanna join in on a awesome event? Do you wanna win a FREE vacation? Well then the 4th annual Laps for Liam event if for you!! ... This is a great event where Spina Bifida families come together & the community to raise money for Spina Bifida You don’t want to miss this event!! Contact me, Ashlyn for more info on the requirements to join this event! Help us spread love to Spina Bifida!!!

SAVE THE DATES Our upcoming events for 2022 May 21st Sporting Clay shoot! You definitely don’t want to miss this. ... August 14th Laps for Liam We will also be set up at Duncansville community days and the pumpkin fest in hollidaysburg! Don’t miss these two awesome events! Can’t wait to see what 2022 brings for the love from Liam foundation

Getting ready for bedtime and Liam wanted to say hi

Liam is loving all the snow Thank you all from the bottom of our hearts for all the calls, texts, and messages we appreciate everyone There is to many people to list but thank you all for the gifts and the food! We would truly be lost without all of you & this wonderful community ... Liam is healing well, and back to his crazy self He’s currently destroying the living room and shooting me and cody with nerf guns We love you all and thank you for making our Liam feel so loved

Who’s ready for my second children’s book I’m so excited to share this book with you guys! This book shows so much courage, teamwork, friendship, and no matter if you have disability your just like everyone else ... I worked hard on this second book and I can’t wait for it to come out. I also added something special in this book that I can’t wait for you all to see Larry the magical dinosaur will for sure be a series and I’m already working on my 3rd book In order to read my second book you have to read my first book! Only $9.99 on Amazon https://www.amazon.com/Larry-Magical-Dins//ref=mp_s_a_1_1

Liam’s scar and wound care routine The top picture is right after his surgery! The second picture is Liam’s scar now. It looks so good. They put a special dermabond on to help it heal and stay closed! ... Then the last picture is his wound care we do We do J&J baths twice a day which means we lightly wash his scar and put fresh bandages on. Keeping his wound nice and clean is very important! We are so happy with how Liam is healing

Last week he was in the operating room this week he’s at the farm show Our boy is soooo strong and such a warrior!!! We are so so proud of him!! ... He’s so excited to go to his first rodeo & got his very own cowboy hat Nothing stops this little boy

And just like that we are ON OUR WAY HOME God is soooo good!! Liam did an amazing job and we are so proud of him. We have to come back down in a month for a follow with neurosurgery and go to the Spina Bifida clinic. ... We are eating lunch and then we will be on our way home to our fur babies

Day #5 we are rolling through CHOP Liam so doing so so good!! And more than likely we are coming home tomorrow. ... We are so excited to get home to our fur babies! God is so good! And we are so so proud of Liam

Liam’s Spina Bifida and scar update The first picture is Liam’s sac. This sac forms in utero when I was pregnant with Liam. Spina Bifida is a birth defect on where the baby’s spinal cord doesn’t develop properly and forms a sac like cyst on the babies spine. Liam has myelomeningocele, and this is the worst case of Spina Bifida you can have. Where his sac was damaged the nerves to his bowel, bladder, and ankle support. ... When they removed the sac when Liam was a day old over time, his body is trying to grow but his spine wants to stay where his sac was. This forms scar tissue and can also form another cyst like sac. The second picture is Liam’s scar after his first surgery! The last picture is Liam’s scar now from his Spinal cord release surgery or known as de-tethering surgery. We choose to do this surgery because Liam started to complain of really bad leg pain. We got an MRI in November and the MRI showed some fluid and scar tissue. It also showed that Liam’s spine was trying to grow in a L shape and not grow up with him. So they do the spinal cord release surgery to help not damage more nerves and for his spine to grow with him. If we wouldn’t have done this surgery Liam more than likely would have lost function because of the scar tissue pushing on the spine. And his spine not growing up with him. So they removed some scar tissue and released his spine so it can grow with him. Which if you know Liam he’s on the move 24/7 so we are glad we got this done We are so very happy with the results of this surgery and couldn’t ask for a better team at CHOP. Yesterday Liam walked, and now we are just trying to get him back to his baseline before surgery & get him stronger!! This little boy is such a warrior & nothing will put him down

On day #4 HE WALKS!!! We are so so proud of him!!!!! Just gotta get him back to his baseline and get his bladder working and we will be home!! ... We are hoping to come home in the next two days or so! We are so so proud of him! And we are so very thankful for CHOP for taking great care of our baby!! God is so good Ps yes he wanted to make sure to have his racing shirt on Rico Abreu Racing

Day #3 and update on Liam!! He’s off sedation and off his iv fluids! We are getting moved to the surgical floor where they will help him recover! ... He’s doing so good and we are so very proud of him! He still doesn’t want us to hold him or sit up fully but that’s okay! We are taking it day by day I just can’t wait to snuggle my baby & hold him

Edit: Thank you to our sb friends at Tucker tough gives!!! Tucker sent Liam these amazing balloons! Thank you so much Tucker and the Thurston family Mia Thurston Whoever sent Liam these balloons and bear literally just made his day! If you sent this to Liam please message us so we can send you a thank you card!! ... His face lit up so much!! Thank you so much

Update on our Liam bug This is Day 2! We had a rough night, but he’s finally getting some sleep now ... He’s overall doing really good. They still want to watch the drain output, and make sure he stays flat for another 24 hours. He’s still in sedation medicine, and hopefully they stop that tonight or tomorrow and will are gonna be transferred to the surgical floor! He can finally eat solid foods so we just ordered him some fries and Mac & cheese which he calls soup Hope you all are having a wonderful Saturday and thank you for continuing praying for our little guy