Lupus Foundation of America, Philadelphia Tri-State Chapter

Welcome to the 2021 Lupus Loop & Walk to End Lupus Now Virtual Kick Off!

On Tuesday, tune into Let's Talk About It: Health Disparities and Lupus, where Dr. Pamela Payne-Foster of the University of Alabama College will discuss how lupus disproportionately impacts women and minorities, as well as how public health disparities increase time to diagnosis and access to care. Register here: http://ow.ly/EQyU50Eh0Xv

Congratulations to Morgen Tyler from Morgen’s Monarchs and Erica Reiff from WeLoveMichelle! Morgen and Erica won LFA Prize Packs for registering for the Lupus Loop & Walk to End Lupus Now events! Enjoy your prize packs and travel mugs! Register today and keep an eye out for future giveaways! https://www.lupus.org/tristate/tristate-walks

We need your help- please take this survey! Lupus is a chronic autoimmune disease that disproportionately affects women and certain racial and ethnic groups, including the Hispanic community. Lupus awareness is significantly low within this high-risk group and there is a need to raise awareness about lupus in Hispanic communities. http://ow.ly/F8uu50EjFN0 Nosotros necesitamos tu ayuda- toma la encuesta, por favor! Lupus es una enfermedad autoinmune crónica que afecta de manera desproporcionada a las mujeres y ciertos grupos raciales y étnicos, incluyendo la comunidad Hispana. El conocimiento de lupus en la comunidad Hispana es baja. Existe la necesidad de informar a la comunidad Hispana sobre el lupus dado que es un grupo de alto riesgo. http://ow.ly/F8uu50EjFN0

Congratulations to Carol Berger, team captain of Lupey Loopers! Carol registered for the Lupus Loop & Walk to End Lupus Now Philadelphia & Eastern PA and won a $50 Amazon gift card! Congratulations Carol! REMINDER: register by the end of the day tomorrow (4/7) for your chance to win an LFA Prize Pack that incudes an LFA travel mug! GOOD LUCK! https://www.lupus.org/tristate/tristate-walks

Congratulations to Tim McCaskell, team captain of JNJ! Tim registered for the Walk to End Lupus Now Central & Western PA and won a $50 Amazon gift card! Keep an eye on the LFA Facebook page for the second winner! REMINDER: register by the end of the day tomorrow (4/7) for your chance to win an LFA Prize Pack that incudes and LFA travel mug! GOOD LUCK! https://www.lupus.org/tristate/tristate-walks

Registration for the Virtual Lupus Loop & Walk to End Lupus Now events is OPEN! We'll be walking on Saturday, October 16 from home. Register by the end of the day on Wednesday (4/7) to be entered to win an LFA prize pack! https://www.lupus.org/tristate/tristate-walks Watch the LIVE Virtual Kick off! http://ow.ly/Co0q50EeJ3O

Have you registered for the 20th Annual Living Well with Lupus Symposium yet? While we'd love to celebrate 20 years in person, this year's symposium is virtual and includes multiple panel discussions and expert speakers to help you live your best life with lupus. The event will be split up into two days: one for those newer to lupus, and one for those who have more experience with the disease. You are welcome to sign up for both events and attend any session you wish. Plus, this event is FREE! http://ow.ly/3wEo50CWtFW

Happy New Year! Wishing you a restful weekend and empowering 2021.

2020 has been...a year. Let's look back at what YOU made possible: March: Members of Congress across the nation were bombarded with letters from you advocating for increased access to hydroxychloroquine after it was erroneously thought to be a treatment for COVID-19. This all happened right after an incredible digital lupus advocacy summit with thousands of participants! May (and every day!): Inspiring others by sharing YOUR story with lupus...keep them coming!... October: Amazing virtual walks across the region, where you raised over $200,000 for lupus education, research, and support services. All year: Funding + clinical trial participation for three lupus medications made great progress and we look forward to more promising research developments in 2021. Your participation and support this year made a huge difference to the Chapter. Help us continue our mission into 2021 and make a gift today! http://ow.ly/WWQP50CVrtM courtesy of our friends at Children's Hospital of Philadelphia!

Tomorrow night: How to Create a Flare Plan (in Under 60 Minutes) will provide comprehensive resources on creating a flare plan and experts will discuss how to implement it, if necessary. Register today! http://ow.ly/EtVf50BQtfr

A very merry Christmas to the Tri-State Chapter family!

We're live soon on WURD (96.1FM/900AM) with longtime LFA supporter Bryant Greene of Always Best Care. His show, "Did You Know" starts at 4 pm. Tune in! https://wurdradio.com/

Tune in tomorrow: We'll be live on WURD (96.1FM/900AM) from 4-5 pm to talk about lupus with host Bryant Greene on "Did You Know." Give it a listen! https://wurdradio.com/ Thank you to Bryant + Always Best Care for being strong supporters of the Lupus Loop/Walk to End Lupus Now!

Kristen Bricker is a doctoral student at The Pennsylvania State College of Medicine, passionate about immunology. The recipient of the Philadelphia Tri-State Chapter's Goldie Simon Preceptorship Award, which was funded by donors like you, she explains the project she's been working on this year entitled "Determining the b cell intrinsic role of miR-21 in promoting systemic lupus erythematosus." http://ow.ly/RJvf50CMrp7 Make a gift to fund future lupus research! https://www.lupus.org/tristate/mask-donation-form

The Lupus Foundation of America, Philadelphia Tri-State Chapter, is happy to share the renaming of the volunteer program to the Tri-State Ambassador program! "Volunteer" often implies that volunteers only help with specific tasks and events. But raising awareness for lupus is a 24/7 job. Your help in increasing awareness of this disease in the Tri-State area is critical to our success. Ambassador opportunities are any opportunities that carry out our mission. These include:... Posting about lupus on your social channels and tag @LupusTriState Joining the Chapter in a social media campaign Inviting the Chapter to your religious or civic organization to present about lupus Joining a Chapter committee Training as a media spokesperson Becoming a peer counselor Co-leading a support group & more! Register for the ambassador training session on November 5: https://www.lupus.org/trista/events/lfa-ambassador-training

Check out AARDA's webinar next week.

Lupus is met with unpredictability, which often leads to stress and anxiety. Focus on what you can control, like a flare plan, which allows you to organize everything ahead of time in case of an emergency. On next Tuesday's webinar, you'll learn the effective points of a flare plan and resources to get started: http://ow.ly/I0f150BQt0q

As Hispanic Heritage Month comes to a close today, we want to thank those that participated in this campaign and followed along. Continue to help us raise awareness of lupus within the Hispanic community and visit our site to continue learning more about eating well with lupus.

Lupus is unpredictable and flares can happen. But you can take control of the anxiety about flaring with a flare plan. Join us on Tuesday, 10/27 for a webinar where we'll discuss creating a flare plan. Sign up here: http://ow.ly/Tixl50BQsSb

Tomorrow evening, learn more about lupus & exercise with the Ask the Experts teleconference. Register now! https://www.lupus.org/tristate/october2020

Did you enjoy the blasts from the past of the walk slideshows? Here they are! Central/Western PA: https://docs.google.com//1S_Vfs_wIMqlb3ttqNa3MWJAr7X/edit South Jersey: https://docs.google.com//1NSa-tmfNAg2Vs70-j_thnQVEEM/edit... Delaware: https://docs.google.com//1SBJTsVmbqNgC-CZnFNbYJU_wFj/edit Philadelphia/Eastern PA: https://docs.google.com//1dis6zssg-xolaeaG5J2UO_xKha/edit

Thank you to all who joined us by walking from home! You really made the most of it and we are so grateful for your support!

Want to watch the virtual walk videos again? Check them out below! Central PA: https://www.youtube.com/watch?v=nqh9C6yhBCg South Jersey: https://www.youtube.com/watch?v=Z8S2IArvjYA&t Delaware: https://www.youtube.com/watch?v=E46nWzTMmLo... Philadelphia/Eastern PA: https://youtu.be/faxnb6XCJWA See more

We want to give a huge THANK YOU to those who joined us for our 10.10.20 virtual #WalkToEndLupusNow and to our presenting sponsor GSK! Because of you, we've raised over $160,000 that will go directly to supporting lupus research, education and support programs. Enjoy these photos from yesterday- whether you walked, ran, biked, or joined us in spirit, thank you for your commitment to ending lupus now! Feel free to send photos of your walk day to [email protected]!

Thanks Bay Bay's Purple Ponchos!! A veteran South Jersey team!